Sawbones: A Marital Tour of Misguided Medicine - Sawbones: The Doctor Patient
Episode Date: August 20, 2024Dr. Sydnee goes through her own story of a routine mammogram and its follow up: how the experience is different coming in as a doctor, the advantages and the disadvantages of trying to doctor yourself..., and how easy it is for someone without every advantage to fall through the cracks of the United States health care system.Music: "Medicines" by The Taxpayers https://taxpayers.bandcamp.com/
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You're worth it. Alright, this one is about some books.
One, two, one, of misguided medicine
I'm your co-host Justin McElroy and I'm Sydney McElroy. Hi, Sydney. Welcome
It looked like you were turning my mic off right as I started talking
No, that would be a terrible thing to do to you and I would never you couldn't you also couldn't do this without me
Too bright to podcast it you couldn't do it without me. It's too bright to podcast it. You couldn't do it without me.
That would be wild.
Certainly for this episode, I would say.
Well.
Every episode.
All episodes.
But I would say double, triple, quadruple this episode.
I could, I think history has proven though,
I can't replace you.
I'm replaceable, you are not.
This is nothing. Charlie.
This is not new information, this is nothing.
No.
Well established.
Honey, you are an essential part of what we do here, and we want you to know how valued you are
Here's some pizza
Heck yeah, wait. Why would you say that not where is it? I was just joking
Oh, it's just a really mean joke the young people get the joke, okay?
Yeah, that's about your manager trying to give you pizza.
Yeah.
You got a lot of problems with that,
a Harmony house, your manager trying to give you pizza.
Harmony house.
Well, well.
Big problem down there.
Listen, it's an unconventional structure
where you don't get paid for work, so.
Well, you don't get paid for work.
Well, I don't get paid for work.
Everybody who works there does get paid for work.
Sydney was using the royal you.
Sid, what is this week's episode all about?
Well, Justin, this one's a little different
than our usual episode because I get a lot of questions.
I check the email and I tell you about them sometimes.
I get a lot of questions about navigating
healthcare experiences and about kind of the way
the healthcare system works because we don't make it easy
to understand in this country.
And it also doesn't work well.
And so even if we can tell you how it's supposed to work,
that typically doesn't reflect the reality.
So I think that it might be useful to share an interaction
that I had with the healthcare system, sort of a process
that I went through, what that was like, especially being a doctor who was the patient.
I think it's a really important experience to have so that you can understand what the
people that you're taking care of go through.
So if that would be something you're agreeable to, I thought that might be useful for our listeners.
Absolutely, I would love to hear more.
And I wanna preface with, at the end of this,
I go through some testing in this story,
at the end of it, everything is fine.
I am fine and I am healthy.
There's no suspense in this story.
There's no suspense, everything turns out fine.
I think that would be a really terrible
kind of triggering episode to say like,
I'm not gonna tell you how the testing
that I went through turned out until the end.
That would be a terrible thing to do.
If we were smart, it would be a two-parter
with a cliffhanger.
No, I would not put you all through that.
Everything turned out fine.
I was very lucky, everything was fine.
But when you don't know, it doesn't really matter
if you're a doctor or a patient
or a doctor who has become the patient until you, when you're going know, it doesn't really matter if you're a doctor or a patient or a doctor who's become the patient
until you, when you're going through the process,
it's very scary and it can be hard to navigate
even when you have kind of an end, so to speak.
So last, this started last January, correct?
Yeah.
Was when I went in for the original.
Yeah, that's right.
So late last January, I believe that's right,
I went for my first ever screening mammogram.
Now you say screening mammogram, what's the difference?
So a screening test means that we don't necessarily believe
there's anything wrong,
that there's a diagnosis,
that there's some sort of pathology.
It is just a routine exam that checks based on
whatever your risk factors are for something.
Usually we think of screening tests for cancer.
So certain ages, depending on other risk factors
like behaviors you may have engaged in your life.
Sometimes gender or racial factors can play,
you know, a role in this screening.
So why were you getting this one?
I was screening because I had turned 40 last year.
And in your 40th year,
it's recommended that you get your first screening mammogram.
I had not felt any lumps or masses.
There was nothing that made me think I had an issue,
but it was just time to get a routine,
standard mammogram to really,
what you hope to do is set a baseline.
This is what my exam looks like typically.
And so then future exams,
what you can look for are changes.
That's really more helpful in medicine a lot of the time
is to have the past X-ray, mammogram, CAT scan, ultrasound, whatever,
imaging study to compare to this current one.
When you have that first one done in a vacuum,
it's really hard to know, right?
Have these things we're seeing been there for 10 years,
10 months, 10 days, 10 hours?
We don't know.
We just know they're there now.
And a lot of things that we're looking for,
specifically cancer or things that could become cancer,
it's their change over time
that makes us more or less suspicious
and leads us to more testing.
So you're kind of getting a baseline.
You're kind of getting a baseline
from which you can judge how things are changing.
That's exactly what I was there to do.
Obviously, so I had turned 40 in March of last year.
And I got-
January is a little bit, eh?
Yeah, I got it in January the following year.
So right, that was actually very intentional.
I wanted to get it before I turned 41,
so I could say I did it when I was supposed to.
I did it while I was 40.
I did technically do it while I was 40.. I did it while I was 40. I did technically do it while I was 40.
So I went and got the exam done.
And the thing is they tell you multiple times,
and I would say this is probably true most places
where they do mammography, where they do mammograms.
They tell you so many times that it is not uncommon
if it is your first mammogram to find something
that they'd like to do some follow-up imaging on.
They tell you that at every step of the way.
I went into here, locally we have the breast center
where they just do mammograms, ultrasounds, biopsies,
whatever you need.
They do it all there.
So all breast stuff happens in this building.
It's right across the street from the hospital
where I work, but it's a separate building.
At reception, the nurse who took me back
to tell me to get changed, the tech who did my exam,
and then the person who told me to wait in the waiting room
for my results afterwards, they all said the same thing.
Don't be surprised if we tell you
that you need some sort of imaging, usually an ultrasound,
after you get your mammograms. That is very typical.
Everybody in the chain was giving you the same information. It was the same warning.
Yes. Now, you would think with that knowledge that afterwards, when that is exactly what happened,
I would not be shocked. And let me say, can I?
You're getting ahead of yourself a little bit.
I was going to say. You're getting ahead of yourself a little bit. I was gonna say.
You're getting out of sequence a bit.
I will, I know.
Well, I realized I should probably walk you through,
if you've never had a mammogram or performed one,
perhaps you work at a mammography center,
then let me tell you what it's like.
Okay.
And I feel like this is also,
there's so many like sitcoms that have joked
about this before the mammogram process.
I don't wanna be one more person doing like,
here's my type five on getting a mammogram.
A lot of it's true.
So you go back into the waiting area, they put you in,
I was in like a little cubicle that had like a bench
and a mirror and then a hook on the wall.
Yeah, it was like, they had a bunch of little,
they're changing cubicles.
So I had a little teeny cubicle where they had a gown
Which the gown that you put on so you take everything off above the waist
Okay, and the little gown you put on it's usually made of the same sort of material as a hospital gown
So it looks if you get I mean in all hospital gown the design is a little bit different, but they're usually like
like a
Like white or cream color,
and then they've got some sort of repeating pattern
on them, I feel like.
Like that's the classic hospital gown look.
This is like a shawl.
You drape it over your shoulders,
and it just like sits.
Like James Brown would put on after a concert or something?
Yeah, and then it's got like one little snap
right in the front.
Flirty.
And then now I will say across the back,
it's shorter than in the front where it hangs down,
like the two panels of fabric
hang very far down in the front.
I mean, those are the stars, right?
You wanna, that's who you need to cover.
Well, I mean, they hang like,
it was like almost down to my knees.
So like.
Well, okay, see.
I'm just saying like it was,
it's a very strange garment, but it does the job.
So I understand it.
It makes perfect sense.
It did the job quite well.
It kept me covered.
It would.
Nobody wants to be the person who's like,
excuse me, my bazooms are too big for the apron.
They've just saved someone the indignity of saying,
my Jai mundo bazoom.
Yes, Justin. And that's exactly the kind of language they encourage using
when you're getting cancer screenings.
I'm just saying, Sydney,
I'm just saying that they're multi-purpose
and you should celebrate that.
That I will say that the size of this gown would cover,
I think the entire range of breast sizes.
And so that's good, that's a good thing.
So you sit in your little cubicle.
I could hear music blasting through the wall,
which was kind of strange.
It was like some sort of like 80s rock station.
I think I was sitting right next to the room
where the radiologist was,
because they have a radiologist there
housed at the breast center.
I think I was right next to where the...
So this guy's just on the other side of the wall, looking at cancer screenings,
like, everybody's working for the weak.
Just blasting 80s music.
He was, or she was.
I don't know.
Actually, I know it was a heap because I know who read my report.
Anyway, and that's very typical, by the way.
I have been, so I don't know,
and you may be a radiologist who doesn't do it this way,
but I'm not a radiologist.
In my career, I have many times walked down
to the radiology suite at the hospital
to talk with the radiologist about a study
that's really, by the way, if you're in training,
if you're a medical student, if you're a resident,
there's a wonderful thing to do.
And most radiologists, most of them,
will welcome you doing this.
Come and say, hey, can you talk with me about this study that you read and I can give you
some clinical information and then we can talk about it together.
Like do you really think it could be this or this?
That's a wonderful thing to do and you learn a ton.
So I've done this many times and they're often sitting in dark rooms looking at screens blasting
some kind of music.
It's not always 80s rock, but some kind of music.
So I sat there in my little cubicle
until the nurse came back to get me.
She took me into the mammogram room.
The mammogram machine, I mean, you can look up a pic,
I'm not gonna describe,
you can look up what a mammogram machine looks like.
The important thing is you are going to get
so up close and personal with this machine
and with the professional whose task it is to get good
images.
Way up in your business.
And they tell you this, but I don't think anyone ever tells you how up close and personal
until you're in the moment.
So they need to, in order to get a good picture of your breasts, what they want to do is compress
the breast tissue between the two panels of the machine, okay?
Kind of flatten it between.
And that kind of makes like common sense
why that would give you a better picture
of the breast as a whole than trying to,
I mean, you can imagine if you just pressed it
against your chest, then you're taking images
of everything behind the breast tissue.
That's not useful.
That's gonna create problems.
You really need to, something above and below
that's going to sort of flatten the breast.
I don't wanna, I don't know how to,
I mean, I'm not asking for PSI, I guess,
but like, what kind of pressure are we talking about
with this machine, or is it-
It is uncomfortable.
It is not, a lot of people told me it was painful,
and certainly, I will say, I think it would probably depend
on how sensitive
your breast tissue typically is, maybe where you are,
if you are someone who menstruates,
where you are in your cycle.
I mean, there's lots of factors as to how sensitive
your breast might be.
I would not use the word painful.
It is definitely uncomfortable.
It is tight enough.
And I think that it kind of triggers
that sort of panic response.
I had a moment of that where as I was completely compressed
in the machine, you realize you could not withdraw yourself.
Oh man, I hate that feeling.
Yeah, it was tight enough that to just try to pull away
from the machine would cause injury.
Gives me chills just thinking about it.
I hate being pinned in myself.
So I think that that's part of when people describe it
as like a very uncomfortable or even painful exam.
I think part of it is that sort of innate
panic response, fight or flight,
like I'm stuck to this machine.
I can't get myself out.
What if the power goes out?
Which I'm certain there's a way to open it
even with powers out.
I'm certain that that can happen.
Once you're physically in the room,
what kind of pace are we moving at here?
Is this a quick thing?
Are they trying to limit the amount of time
that you're in this kind of like vulnerable place
or is that kind of just like?
That's much more fun.
They limit the amount of time that you have your,
that you're exposed for sure.
I mean, I had my gown on all the way up
until I was putting myself into the machine, so to speak.
Wait, you put yourself in the machine
and a professional do the stuff in?
Well, no, so what happens is you,
you lay your breast
on the bottom panel, basically.
You kind of push yourself into position
and you almost have to like, as you do each side,
you kind of have to hug the machine.
You have to like press yourself against it
to make sure your breast is completely in.
And then you have to extend your arm out
and kind of pull yourself against,
like I was embracing the mammogram machine.
At this point, I'm into a balance issue, I feel like.
At this point, I'm severely worried
about losing my flitter.
It's a, you have to, and I will say,
the tech that I worked with was amazing
because she talked me through every step.
So it was not quick in the sense that she wanted
to make sure that I knew what I was doing,
that I was comfortable, that I was comfortable,
that I was standing in a position I could hold,
and that she got the images that we needed.
I mean, that's the other thing.
They don't wanna bring you back to do it again
because they didn't get the appropriate images.
They wanna get it right the first time.
And so they are very,
I mean, the person who assisted me was very meticulous.
And once I was in position
and she showed me where to put my arm
and she said, yes, you're gonna squeeze the machine.
Like, you know, I mean, she told me
how close I was gonna get.
She then positioned my breast in the machine.
Like you will, you know, that is part of
going through this process is the person
who's responsible for getting the images
will make sure that your breast is positioned appropriately
and continue to readjust you and check the machine
until they are certain that they have,
you know, that they're going to get the right images
that they need.
And you do everything you do on one side,
then you turn around and repeat on the other side.
Is there any kind of warming gels or anything like that?
Not for the mammogram.
There's no, okay.
Not for that part of this.
I know there's some stuff they put on like your belly
when you're doing that kind of like ultrasound kind of thing.
So I didn't know if there was a-
We will get to that.
Okay.
But this was just the mammogram.
At this point, all I was getting was the same
uncomfortable exam that I had heard about
from not just doctors and colleagues,
but from stand-up comedians for a long time.
Actually, I should have asked at the beginning,
but super quick, 30 seconds, what is a mammogram?
They're just taking pictures of the breast tissue.
It's a special form of imaging that is specifically designed.
The machine is designed,
the way the breast tissue is compressed,
and they are looking at the density of your breast tissue
to try to figure out, are there any masses in there?
Are there any lumps?
Are there cysts?
Are there something that could be precancerous?
Are there cancerous lesions? What there any lumps? Are there cysts? Are there something that could be precancerous? Are there cancerous lesions?
What does the tissue look like in the breast?
Okay.
Just like any other imaging modality is sort of calibrated for what it's taking a picture of.
Is it looking at tissue or fluid or empty space or bone or, you know,
this is a machine that is specifically designed to take the best pictures possible of breast tissue.
Okay.
Which is like fatty and lymphatic tissue for the most part.
Gotcha.
It's like a gland and fat.
Anyway, so you go through this process, at least at my center,
and probably this is different depending on where you go.
I was told by the tech this last time I went, I thought this was interesting,
you don't have to stay to hear your results right away, but you can, and they're usually pretty fast.
And for me, oh, I wanna know.
I don't wanna think about it.
I don't wanna stay in the worry zone for one second longer.
But some people, she told me this,
I thought it was interesting.
Some people are out of there immediately,
and are like, just call me.
My doctor will call me, I don't care.
Out.
And I think it's just how you're wired.
Yeah, it's interesting.
But anyway, so after the exam was performed
and she knew she'd gotten the images she needed,
they let me go back to my cubicle, I got changed,
and they told me to wait out in the waiting room.
I waited, I would say that first time
I didn't wait very long.
It was probably like maybe 10 minutes, maybe 15,
not that long.
They have a TV that's muted, but it was on HGTV,
so that's great.
Hey, bonus, yeah.
And then at the end of 10, 15 minutes,
the nurse who did the exam came back out
with my little folder, walked over to me,
sat down next to me and said,
so just like we warned you,
sometimes we see something and we're not sure what it is
and we're gonna have to get some follow-up images.
So we're gonna need to schedule you for an ultrasound
because the radiologist saw a shadow.
And this is all I'm told.
And nobody, by the way, at this point knew
that I was a physician.
So I think that-
Was that a conscious choice?
How did you?
That is a really interesting question.
And I have more to say about it
than can fit in just a few seconds.
So I'm gonna make you go to the billing department with me
before I answer it.
Okay, you're always doing this in our regular conversations
but to hear you do it to our listeners too is rough.
Sydney's always paywalling conversations we have.
I guess, yeah, if you insist.
Let's go to the movie department.
Let's go.
The medicines, the medicines, that escalate my cough for the mouth.
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So, Sid, as you were leaving for your exam, I remember you took off your floor-length lab coat
and the mirror you wear around your head and your stethoscope and your ID tag and everything. You
said, I would go incognito. Can I say I had to wear my white coat for this video thing I was doing recently
and it was so hard to find my white coat
and then putting it on felt so weird.
It was still like creased from where it had been folded.
Anyway, no, I don't tell people typically.
I mean, now my OBGYN knows I'm a doctor
because we work at the same place.
We're colleagues.
My family doctor knows I'm a doctor
because we work in the same department. We went to med school at the same time. You're colleagues. My family doctor knows I'm a doctor because we work in the same department.
We went to med school at the same time.
You don't put on a mustache and say, hello, I am a,
not doctor, who's doctor?
No, so in those interactions, they know I'm a doctor.
In this interaction, and most of the time
when I'm outside of my system,
I don't tell people that I'm a physician because-
Sounds braggy.
Why does that sound braggy to not tell people I'm a doctor?
No, I mean, it would sound braggy to say,
I'm a doctor too.
No, I have invoked it one time when one of our children
had to interact with a doctor,
I had to go to a doctor's appointment.
And this physician was going all the way around the bend
to explain something to me medically,
and I knew that it was gonna take a while.
And so I was gonna savor some time and headaches
and diagrams she was about to draw if I said,
by the way, I'm a family doctor.
And she was greatly relieved
because I knew I was about to get a very, and she was doing to draw if I said, by the way, I'm a family doctor. And she was greatly relieved because I knew I was about to get a very,
and she was doing a great job,
but I also knew I didn't need the complex explanation.
And that seemed rude to make her.
Anyway, for me, I don't want to engage my doctor brain
about myself.
I think part of it is a very logical thing.
You shouldn't doctor yourself.
You should let other people
help make those decisions because it's hard to think logically about your own healthcare
in the risk benefit kind of. I think we tend to either dismiss it as there's no way I could
possibly be sick. I can't be a patient. I'm a doctor. I've said this before on the show.
It's hard to think of yourself as both. I think the other way you could go, which is what I was doing, was catastrophizing. I know
everything a density or a shadow or whatever they want to call it. I know everything that can be.
And I have seen, not only do I know all the technical words and the textbook, what it could be,
I could conjure up the image of a patient
that I have cared for with the entire range
of those things in my head.
You know too much.
I know too much.
And I have seen the no big deals
and I have seen the very big deals.
And I know how all those stories ended.
And that is a lot to keep in your head when it's your body. and I have seen the very big deals, and I know how all those stories ended.
And that is a lot to keep in your head when it's your body.
So I don't want to be a doctor,
so I kind of turn that off as much as I can.
And it's easier if they talk to me like I'm a,
I have no, I don't necessarily have any medical expertise.
It's just easier, just talk to me like you,
assume I don't know anything.
And if you say that, but they know you're a physician,
they still don't.
They still don't.
And if they don't know you're a physician,
they just talk to you like, you know, you're a patient.
And that's kind of all I wanted to be in that situation.
In that case, just saying,
we saw something we need to get an ultrasound is vague enough,
which is kind of what we're trained to do.
Don't use, man, I can't tell you how many times
I was told this, don't use the C word
unless you really think it could be the C word.
Wow, I have heard that much differently.
Okay, I'm not sure you're right about that, Sydney.
I was told don't use the C word pretty much across the board
for me, is it different?
It's different, it's a different C word.
Okay.
I'm talking about cancer, but even in medical school,
even in my training, they would say the C word,
the word, let's be grownups, let's just say cancer.
But the point is, we are trained not to introduce
that word into the conversation until we know
it's either a distinct possibility or a certainty.
For what they saw in my mammogram,
it was highly unlikely that it was cancer.
Is that on the list of things it could be?
Yeah, but it was highly unlikely.
And so in that situation, you're not gonna tell the patient
it could be cancer because you're almost certain it isn't,
and you know that's all they're gonna hear.
Once you say the word cancer,
your patient doesn't hear anything else.
And so we're trained not to introduce it
into a conversation until we know we have to.
So they told me that they were gonna have to schedule me.
Isn't that interesting though,
because it is already in the conversation.
It is.
You know what I mean?
It's so weird.
It's like such a quirk, I think,
of the way we're put together.
Like it's in the conversation.
Like this is obviously why we're here.
It's what we're all worried about most of the time.
And you know, it's interesting.
I wonder if that's a, there's so many flaws,
as we've talked about on the show many times,
in our medical training and in the way
that we teach doctors to be doctors.
There's so many things we could do better.
I wonder if this is another area.
We're already thinking, is it cancer?
And oftentimes I will have patients say,
could it be cancer?
So we'll just have to jump to that conversation.
Why don't we just address it upfront?
I know what you're worried about.
The likelihood it's that is extremely low.
I'm not telling you zero.
You can't tell people zero until you know it's zero.
But why don't we just address it?
Well, and well, that's tough too,
because what the patient wants you to say is,
there's absolutely nothing wrong.
Like what they want is you to say concretely,
it is not cancer and it couldn't be cancer.
But if you leave any daylight,
the person on the other end hears it's definitely cancer.
Like or at least my brain.
Well, and that was, I mean, I knew, I knew.
And then once I got my report, I knew that one of the things this could be, that it was
highly unlikely, but possible.
But even that is like part of, it's all part of a broader conversation, right?
That would just, it's a very different conversation, but it still would just be the beginning of a conversation
so I
The the difficulty I came up against at that point is
My family doctor who had ordered my screening mammogram for me had actually left our practice
Between when she ordered it and when I actually had to performed, because there was like a month and a half
in between or something like that,
which is not atypical.
Here's a weird thing, and this might be different
in your area, but let me tell you a truth about here.
I live in your house.
I'm talking to our listeners.
Here, getting screening cancer tests is way harder,
like getting them scheduled in a timely fashion,
tends to be way harder
at the end of the calendar year than at the beginning
because it has to do with deductibles
and a lot more people are trying to get colonoscopies
and mammograms and stuff scheduled
when we get to like the back half of the year
than at the front half.
So that waiting period I had back in January
was probably not that bad in the big picture,
whereas you might wait much longer as the year goes on.
Interesting little piece of information.
So they sent what they told me at the desk after the nurse gave me my results, she walked
me over and handed me over to the front desk person and handed me my chart.
And they said, okay, we're going to send a request to your doctor to order an ultrasound
of your breast so that we can see what this density
in your left breast is.
Okay, well the problem with that
is my doctor had left the practice.
So they were going to send something,
and because it's in my office,
I knew how this was gonna go.
A paper with that doctor's name
was gonna get faxed to my office.
They were gonna look at it and say,
well, she's not here anymore.
And if I was really lucky.
They might forward it to her.
No, they wouldn't forward it to her
because she's in a totally different practice.
They let her know it's there.
If I was really lucky,
they would show it to another doctor there and say,
does anyone know who sees this patient now?
Another doctor needs to take over this patient.
But probably it would get shredded
and nobody would ever order my ultrasound.
So I was freaking out.
I knew who was gonna take me over as our family doctor
but I had not actually seen her yet
because I didn't really need to yet.
And so I was basically now in a situation
where I had to find a doctor to order this ultrasound for me
and also I'm freaking out.
Right, yeah.
So I was lucky I, my OBGYN is somebody I can get a hold of
and this family doctor that I knew I was moving to
was somebody I had gone to med school with.
And so I could reach out to and say,
I know it is wildly inappropriate to text you about this,
but I am freaking out.
Which-
Do you realize that, I mean, like, do you hear,
I mean, when you line it up all together like this,
how do we expect anybody to do this?
It took me several hours of texting people,
and everybody was working, so nobody was neglecting me.
They were just working.
They're working, they're doing their jobs.
They can't cater to my needs immediately, right?
They shouldn't have to, but I'm losing it.
So I want somebody to cater to my needs immediately,
which is a normal thing that we all experience
in these kinds of situations.
I was lucky enough to have access that most patients don't
because I got cell phone numbers, I can text.
I've got secret Doc Halo doctor text.
I can send secret text messages to other doctors
in my system saying,
could you please order this ultrasound?
Could you, you know.
So I was able to get an order relatively quickly.
And not only that, because it was for another doctor,
it was followed by a phone call saying,
hey, do you think you can get her in quickly?
Right, Gracie and Will.
Yeah.
These were not things that I requested,
these were things that just happened for me
because I am a physician in the system,
which isn't fair or right, or I'm not saying,
I'm not saying, now at the moment, did I refuse it?
Did I say, oh, by the way, don't try to get me in faster?
No, because I was a scared patient.
But to your point, that process that I went through
that took me a day to troubleshoot,
and I was on the ultrasound schedule for the next day,
would probably take a few weeks
for someone who didn't have special access to the system.
Now, if your doctor didn't move practices
and they just sent the order to them,
it would probably just take another week
for them to respond, get the order in, get you scheduled.
But how many stories do you hear
about people falling into these cracks?
I mean-
And, you know, again,
when you wanna talk about privilege
in the healthcare system,
so I'm somebody who is uniquely tied into the system
because of my, not just what I do,
but because I work at the facility
where I was having it done.
So I have direct access to this facility.
If you remove me from the facility, it gets harder.
If you remove my profession, it gets harder.
Now, what about all the other things
that I have privileges in?
I have insurance, I have transportation,
I have a husband with a flexible work schedule
where if I need you to get the kids for me or whatever,
so that I can go to an appointment right away,
I've got that.
Flexible work schedule,
kind of say such a nice way of saying an important job.
I really appreciate that.
Thank you so much.
I have a flexible work schedule.
I can leave my work and go get a mammogram right away
if I need to.
Sure, right.
Yeah, yeah, yeah.
Right? Like we both do.
Like the amount of privilege that we have
to facilitate getting that quickly,
compared to somebody who doesn't
and how much harder that process would be
and how much easier it would be for exactly that,
for them to fall through the cracks.
Y'all, I was at the hospital this week
for two hours and 45 minutes to get an appointment
to come back for surgery.
And that's literally all I did there.
It's wild.
I got forgotten for 45 minutes.
I had to call Sid and say, hey, what should I do?
She said, oh, they probably forgot you.
Look.
Which they had.
They had, they forgot the J-Man.
All of that to say, it really,
we make it so impenetrable, this healthcare system.
And if it weren't for shortcuts,
I certainly wouldn't have gotten an ultrasound scheduled
for the next day.
And for some people, if it weren't for shortcuts
or special access, they may indeed fall through the cracks.
Say, well, I guess my doctor will call me
with this other appointment,
but your doctor never gets the message
and six months go by, you know, I mean, or more.
And then there's the whole health literacy.
I knew what was at stake because of my training.
If somebody just says, we saw something,
it's probably nothing, we'll probably need to get
an ultrasound, don't worry, don't worry,
you might hear, oh, it's probably nothing,
and you don't worry.
Right.
But what if it is?
So anyway, I went the next day, you went with me
for this part of the experience.
I, same place, registered again, went back, same cubicle.
The only thing that was distinct about this experience
is that the radiologist was blasting
Don't Fear the Reaper while I was getting dressed.
Unbelievable.
Which is like not great for a cancer screening center, guys.
It shouldn't even be on the playlist.
Can I say that everything else
about my experience there was very nice?
Everyone was very nice and thoughtful and patient and kind and warm.
It was just the Blue Oyster caught y'all together.
Yeah, it was just the Don't Fear the Reaper. But I went and I had an ultrasound of my left breast. That experience is where they use the warm gel. And they did.
They had the little thing that they put the bottle of jelly in that keeps it warm. So when they squirt it on your boob, it's warm. That's really nice.
I know.
So you're not cold.
They keep your other breasts covered.
Like you kind of lay on your side
and you wear the same little thing
and you just uncover the one breast
that they're ultrasounding.
So it's all very, you know,
and they've got a curtain off room.
The lights are kind of dimmed
because they're using the ultrasound machine.
So it's better if it's not too bright.
It's all a very peaceful experience.
She did the ultrasound of my left breast.
I did ask her to tell me what she was seeing.
I don't know if at that point she suspected
that I had medical training,
because why else would I ask for specifics?
She told me as she was doing the exam,
and an ultrasound is you take a little wand
and just
kind of rub it over the area that you're trying to like bounce sound waves off of and get
an idea of what kind of tissue is in there basically and the density of the tissue tells
you a lot about what it might be.
So as she was doing it she said, and this is unofficial, the techs are not allowed to
give you the official report, the radiologist has to, but she said it looks to me like a
lymph node. And then she to me like a lymph node.
And then she told me what a lymph node was,
which I know what a lymph node is,
but I'll always, I'll take it.
You tell me, that's fine.
And so she was explaining to me that it was probably
just my body reacting to some sort of infection
or allergen or something and my lymph node's enlarged
and make antibodies and it's because my breasts are glanned
and blah, blah, blah.
And it's probably nothing, but she was to get the radiologist to look at it.
She did find another one.
She was like, oh, I actually see there's another area too, which was a very like, I'm going
to vomit kind of moment.
I went back out to the waiting room with you and you remember what happened?
No.
You don't remember that?
How do you know?
This whole day is like burned on my brain forever.
My brain works the opposite with days like this, where it's this level of panic.
I have almost no memories. Like it's nothing.
I remember every second of it.
I was asked to come back so that she could ultrasound that second area she had seen again.
Oh yes, oh my god.
So I had to go back in for a second look, which made me worry that it was something.
I'd block that out.
So same thing again.
And everybody again was very nice and pleasant about it.
We waited in the waiting room afterwards.
And then finally she came out and said,
it looks like a couple of little lymph nodes.
We're not worried.
We're going to do a follow-up ultrasound in six months.
So, which is all like, and I know this logically,
that's good news.
That is unlikely to be anything concerning.
If you are going to do a follow-up ultrasound in six months,
that kind of gives you a window into how worried we are
that it's something serious.
If we thought it was something serious,
we would probably wanna do something
sooner than six months, right?
Well, they can't give you what you want, which is-
It's still not nothing.
Well, and it'll never be anything.
That's what you want is-
No.
Actually, we were wrong,
and we're the jerks for wasting your time
for even bringing you in here.
They're perfect, and you'll never have any problems ever.
You never have to think about breast cancer again
as long as you live.
That's what you wanted to say, right?
So I went back just last week on
Charlie's birthday It was where I didn't forget the exam because I knew it was on Charlie's birthday
I went back for my six month follow-up and it was it's one of those weird things where it had been in the back
of my mind
Every day since I had left the Breast Center that day
when I got the ultrasound.
Just like a low level drone in the very background
and when everything else was silent,
I could hear it again.
You still got that ultrasound coming up.
I have a very similar thing for when the new Dave & Buster
is just gonna open up at the Huntington Mall.
It's like when everything's quiet, I'm like, I know it's open, yeah.
I know it's longer.
Yeah, that's just as serious and intense.
I'm just trying to lighten it a little bit.
You know, Sid, just a little bit of paprika.
I've already said that the good news is
I had the follow-up ultrasound last week.
Everything looked identical
to what it looked like six months ago.
Well, I don't want to co-op.
I guess I'm nervous.
And I was fine.
As, as, as somebody who has been through these stories before that have not gone so
well, like ended so well, like I don't want it to come across that we are, that we
think this compares to people who have been through, you know, that we're, we feel
so fortunate, but I think it was like
making sure that people knew that that wasn't something
that not only did the artist didn't experience,
but it's kind of like worse, it sounds like in some ways,
if you let it be.
Well, no, I wouldn't say it's worse though,
because when I was in a situation
where I didn't know how to get an order like I needed an order for an ultrasound and I wasn't sure who was going to put it
in, I had instant access to two doctors, not instant, but within the same day, I had same
day access to two doctors who were able to do that for me.
And even following up this ultrasound that I just had done, they told me, the radiologist
told me, well, the nurse told me that it was fine.
I got a text from my OBGYN an hour later saying,
I just got sent your ultrasound report
and here's what it is and you're fine.
I meant specifically the catastrophizing,
like that specific waiting to find out
what you needed to find out.
Obviously like it's nice
because you can cut it a little shorter,
maybe by circumventing,
but still like you're not necessarily immune to, you would think as much as you have to trust statistics and like potential outcomes as a doctor, like,
almost, most of the time, it seems like you're kind of saying like, this is our best option that we have available, right? Even if you know those, and you know,
it's like when you go to get a minor, very minor surgery,
but they still say like, hey, just so you know,
there's always a risk with surgery.
And you know that, so as a doctor,
you're not only tripping about it,
but it seems like as a doctor, you still hear that risk.
That risk is still very much super duper present to you.
You can't dismiss it like you would
if you were going through a flow of symptoms.
Right, no, you can't.
And I mean, I will say that there are experiences
that you have that, because you see it so much more
than someone who doesn't work in healthcare, right?
Because yes, as a patient,
you may experience your own,
whatever your own health journey is,
whether you do get diagnosed with something you don't,
or you might have a friend or family member as a physician,
you might interact with hundreds of people
who have that condition.
And so you see the more common outcomes,
but you also see those rare times
where something didn't seem like it was anything
and then it turned into a very big deal.
Most of the time, that's not the case, right?
We run the numbers and we say most of the time
when something looks like this, it's nothing.
And that's usually right.
But every once in a while, it is something.
And what's tough is that you can't then make the rule
we biopsy everything we ever see.
Because we would do a lot of unnecessary biopsies.
Occasionally those lead to harm, most of the time they don't.
But occasionally something goes wrong.
And so then you just start compounding the harm
you might cause if you go wild with testing
following every single study, right?
It's why we don't start doing cancer screenings
when everybody's 20 and do them every six months
for the rest of our lives, generally speaking.
So I don't know, there were things about it
that made it easier because of the access.
I knew logically that I was okay,
but yeah, I'd seen when this,
people in my exact situation turned out to have
a very real serious problem.
I will say what it reminded me,
and I feel like because of the kind of medical work I do,
I'm not necessarily the one
who needs the most reminding of this.
But I still take for granted how even if I have to break
some bad news to someone,
or even just give them the possibility of bad news,
we got this result, it might mean nothing,
but we gotta do some testing.
I still think I can talk about it in a way
that will make the patient feel fine.
And I don't know that there's a way you can do,
the best you can do is tell them the truth,
tell them what the risks are, tell them what it could be, try to answer all their questions as best you can do is tell them the truth, tell them what the risks are, tell them what it could be.
Try to answer all their questions as best you can,
and then give them the follow-up plan,
but know that they're gonna walk out of there terrified.
They're gonna walk out of there wandering.
And so what you can do with that information
is stay on top of it, be responsive,
make sure that they get the next thing scheduled,
that they get their results thing scheduled, that they get
their results in a timely fashion, which is something we can do on an individual level
as healthcare providers, but something that our system should also be built to do.
Everybody should have immediate access to what are my results and what are we going
to do about it next and how fast can we get it done?
I mean, that's how the whole system should be.
We shouldn't have to wait for days in fear
that something is seriously wrong without knowing.
Well, I am beyond relieved that all is well
on the breast front.
Yes, yes, me too.
I've been returned to routine screening.
So I will get another screening mammogram
next January, late January, early February, something like that.
All right.
And hopefully just move on from there. But I think it's a good reminder for those of us who work in health care,
how scary it can be on the other side.
And a good reminder that we need a better
healthcare system that prioritizes patients.
If anyone listening is in charge of the healthcare system,
just go ahead and do a new one.
Start over.
Did you hear about podcaster Justin McElroy
being stuck in the hospital for two and a half hours
to make a boring appointment?
Can you imagine the hours of comedy and entertainment
that were just lost to the abyss
as I sat there watching muted HGTV? I mean, can you imagine the hours of comedy and entertainment that were just lost to the abyss as I sat there watching muted HGTV?
I mean, can you imagine?
I'm so sorry, Jessam.
Don't say sorry to me, say sorry to history.
Truly, no one has suffered more than you.
The one thing you can say about me
is I always get the point of the episode.
Thank you so much for listening to
Suffolk's Merit-a-Tour of Miss Guy Madison.
We wanna say a huge thank you to the taxpayers.
Their song, Medicines, is the intro and outro
of our program.
Thanks to you so much for listening.
We really appreciate it.
That is gonna do it for us for this week.
Until next time, my name is Justin McRoy.
I'm Sydney McRoy.
As always, don't drill a hole in your head. Music
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